Another week of treatment is completed for Caleb. Once he starts the next phase, his chemo will be completed exactly three years from that date.
Caleb had a good week. He went in for labs last Wednesday and they wanted to wait till Friday for his transfusion, so we knew Friday clinic was going to be a long day - so we were well prepared. In the morning, he wanted to help place his "magic cream" on his port. And we had NO tears during access or taking the needle out on Friday. He got a round of applause from his favorite nurses in the clinic! That day he received his chemotherapy and a Red Blood Cell transfusion. His platelets were low (in the 30s) and I remembered last time he got one then. Dr didn't want to transfuse that yet, hoping his counts would start going up since he no longer had oral or shots of chemo that week.
Saturday I decided I wanted to become part of the bone marrow donor registry. I found a local drive at a school and asked my sister and niece to join me. They both did. The process was very easy, took about ten minutes and the thought that I may be a match and able to help someone in the future is an amazing feeling. With Caleb being sick, it has opened my eyes to many different ways to help others. Even donating blood is so important. Caleb will need transfusions throughout his treatment, so donating is so important to many people, including pediatric cancer patients.
When we were leaving the drive, I noticed spotting on Caleb's shins. I had checked him earlier before we went out because I knew his platelets were so low. And about two hours later, there is was - petechiae. I called his doctor and we were a block from the hospital - so we ended up in the Emergency Room for his transfusion. That pretty much took up the rest of our Saturday. We had hoped it wasn't going to take that long, but 6 hours in the ER is pretty much expected. I wish clinic was open those days. The amazing nurses up there would've had us in and out and no big production about accessing his port. Caleb is very used to his nurses in the clinic.
We had a fun Sunday though, so it made up for being stuck in the ER for pretty much our entire Saturday. Caleb is in great spirits and he gives me so much strength. I love that little boy more than words can even explain. <3
Caleb had a good week. He went in for labs last Wednesday and they wanted to wait till Friday for his transfusion, so we knew Friday clinic was going to be a long day - so we were well prepared. In the morning, he wanted to help place his "magic cream" on his port. And we had NO tears during access or taking the needle out on Friday. He got a round of applause from his favorite nurses in the clinic! That day he received his chemotherapy and a Red Blood Cell transfusion. His platelets were low (in the 30s) and I remembered last time he got one then. Dr didn't want to transfuse that yet, hoping his counts would start going up since he no longer had oral or shots of chemo that week.
Saturday I decided I wanted to become part of the bone marrow donor registry. I found a local drive at a school and asked my sister and niece to join me. They both did. The process was very easy, took about ten minutes and the thought that I may be a match and able to help someone in the future is an amazing feeling. With Caleb being sick, it has opened my eyes to many different ways to help others. Even donating blood is so important. Caleb will need transfusions throughout his treatment, so donating is so important to many people, including pediatric cancer patients.
When we were leaving the drive, I noticed spotting on Caleb's shins. I had checked him earlier before we went out because I knew his platelets were so low. And about two hours later, there is was - petechiae. I called his doctor and we were a block from the hospital - so we ended up in the Emergency Room for his transfusion. That pretty much took up the rest of our Saturday. We had hoped it wasn't going to take that long, but 6 hours in the ER is pretty much expected. I wish clinic was open those days. The amazing nurses up there would've had us in and out and no big production about accessing his port. Caleb is very used to his nurses in the clinic.
We had a fun Sunday though, so it made up for being stuck in the ER for pretty much our entire Saturday. Caleb is in great spirits and he gives me so much strength. I love that little boy more than words can even explain. <3
Caleb relaxing at home with his Mickey
Putting his magic cream on his port to make it go to sleep before clinic
Hanging out during his Red Blood Transfusion at Clinic
Emergency Room on Saturday - still all smiles
Laughing at his silly cousins during his transfusion
Making Goofy Faces
Caleb loves watching motocross & cheering on his favorite rider
Hanging out by the lake
Please consider becoming a Bone Marrow Donor. If you are interested you can find a local drive OR
go to BE THE MATCH ! There you can have a kit mailed to your home and you can do it yourself. It is very easy and takes ten minutes. YOU could save a life!
Thank You For your Continued Support, Prayers and Love!
Love,
"Caleb's Mama"
Watched "Happy Feet 2" with Caleb this week. Heard this song and knew I had to share it on here this week.
Bridge of Light - P!NK
You both are soo amazing!! Thinking of you and Caleb..
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