Skip to main content

Posts

Showing posts from February, 2013

Low Counts & Chemo Hold

I brought Caleb to clinic last Thursday because he had more bruising than normal and was out of breath at his tball practice the night before after running around. I hate not knowing his counts after knowing them weekly like I used to. This phase is all new to us and not knowing counts is part of it. So, just as I expected, his counts tanked. I'm thankful that I trusted my "mother's intuition" yet again and questioned it. I knew the bruising was happening far to easily and him gasping after a run around the bases wasn't normal. All of his counts are at the extreme LOW ends of the scale and almost at transfusion levels for both red blood cells and platelets. Dr Levy put Caleb on an ORAL CHEMO hold and SOCIAL ISOLATION. I guess after 52 days of chemo in a row it's taken a toll on his little body and counts. Since everything is so low his risk of infection is extremely high as he is neutropenic. So, we are having fun just hanging at home - watching movies, playin

Guest Blog on The Gold Hope Project - International Childhood Cancer Awareness Day

In my last blog I spoke about my guest blog appearance on The Gold Hope Project . You can find the link to the direct blog at: Home Invasion The post is to give you an insight as to how I felt and the emotions that I feel each and everyday since I was told my son had cancer. Please LIKE it, SHARE it and SPREAD AWARENESS for childhood cancer.... We are the voice these kids need! Thank You for your continued love, support and prayers! Love, Caleb's Mama

Trekking Right Along

Filling everyone in on our little fighter! He's been doing great overall. Still having nausea each morning from his chemo pill that he takes daily at night.  So every morning when he wakes up, his tummy is upset. I'm trying to tweak when I give him his chemo pill to make his mornings a little easier for him. And still getting used to this new norm of only knowing counts once a month. As much as any normal person would think that is great, as any cancer mom would tell you, it's not. You sit on edge at each blood draw as it is, but to no know for weeks what their immune system is like, how likely they are to fight something off, if they'd need a transfusion of some sort is hard. BUT I am taking each day as it comes, and it is getting easier for me. Caleb started baseball, well T-Ball this week. He is super excited about it. It was so nice to see him off and running with boys and kids his age again. I chose to sign him up for baseball instead of soccer this season as I f