Help Cure Caleb- Caleb's Journey

Caleb has finished his third inpatient stay and third dose of high dose Methotrexate. He also needed a spinal and Vincristine IV infusion - He again did very well with everything. It was another long week in the hospital. I think as each planned inpatient happens, they feel longer for the both of us. He was craving food that Mama makes at home for him and wasn't drinking much after his 24 hr infusion. I think that accounted for why we had to stay an additional night. The past two inpatients he was out at hour 54 after his special pill to prevent mouthsores. This time his levels didn't move AT ALL! I was in complete shock - but he has been exceeding the expectations with his other visits, so I knew they would come down in due time. But if you don't make the hour 54 discharge your levels to discharge need to be VERY low. The Dr. said that he had to be below .1 and most likely, he'd be at .2 and be staying again another night. Hearing that, we were both discouraged. I had

Another week down and completed with treatment. Caleb finished his 2nd round of high dose MTX last week. His counts were great and he did an awesome job, yet again. He's getting much more accustomed to the "long time doctor," as he calls it when we need to sleep over. Though the annoyance of the IV pole beeping and being awoken by the nurse at various times throughout the night for samples from him we could do without. Overall, treatment is going as expected and he's doing awesome. "He looks like a million dollars," Dr. Guisti always says when he sees Caleb. Again he had his friend, Trevor in at the same time so we set up some Skylander playdates. Then before we were released to go home he got to have a lunch date and playtime with his buddy, KK. Always great to get Caleb and his friends together if they have to be inpatient the same time. When we got home from the inpatient stay Caleb had an awesome package awaiting him! His "Peach's Neet Feet

This week has been a quiet one, thankfully. Caleb just had to get his counts checked and he's doing great. Looks like he will have NO HOLD on his chemo and start again this Monday for his second round of high dose MTX. So we are planning on being inpatient at least Monday - Thursday this week. Making the most of our Sunday today - knowing we are gonna be inpatient for at least three nights. Hope you all had a great Holiday this week. Caleb had a blast watching the fireworks display in our town.... seeing him smile with each firework was priceless. Loved it :) He also had fun on that day cooking out and putting off our own little firework display.  A BIG THANK YOU this week to the  Childhood Leukemia Foundation for the AWESOME wish basket. Caleb got a new Nintendo 3DS system that he's been asking me for now for a while! He loved it and everything else in the box. Bringing all the card games to our inpatient stay to hopefully make our days go by faster! THANK YOU!!! So I&#