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Showing posts from 2017

One step closer...

Dear Donor, We have been told YOU have been found, YOU are the perfect match for my boy and YOU have agreed to give him bone marrow (no peripheral blood, actual bone marrow extracted from your hip where you will undergo a day stay surgery and have soreness for a few days after) . All we know about you is that you are 29 years old, a male and do not live in our country.  You will be taking time out of YOUR daily life to help save my boy. That is the most selfless act any person can do. We are grateful and can not wait for the day we can meet you. Thanking you will NEVER be enough. NEVER. We are one step closer now to having transplant. My boy worked and fought LONG and HARD these past few weeks. You see, the chemotherapy wasn't doing the job it was supposed to. The chemo was recognizing his cancer cells and saying "Screw you, we've seen this before!" So, my boy was lucky enough to be fit for a trial where they used a new immunotherapy drug called, blinatumomab. He

An Open Letter to the Possible Match for my son....

Dear Possible Donor, You probably haven’t even heard of him , but I am reaching out to you. My little boy needs your help.  You may be going to an event this weekend and walk by a table labeled Be The Match and decide to get swabbed OR you maybe already did that years ago and totally forgot  you even did it.   You will be getting a call in a few days or weeks where they tell you that you are the possible match for someone. I know your life is busy and you are wondering what this may entail.  You will have to fit in doctors appointments for blood work, probably multiple times. You will be asked many medical questions and I’m sure you will be asking the same to the doctor.  I ask that you really consider doing this for my little boy. They probably won’t tell you much about him - just that he is 9 years old and is your match. Let me tell you more about him. Caleb Blaise is a strong, courageous little boy that has been through more than most at his age. He endured three and a hal