Help Cure Caleb- Caleb's Journey

Late Wednesday evening the phone rang, it was a local number I wasn't familiar with. I answered and heard, "Hi Candice? Yes? It's Dr. Eslin. " That's one of Caleb's oncoglogists so I immediatately jumped out of my seat and walked into my room. He went on to say, the results are in and I wanted to tell you them before your family meeting tomorrow. My heart sank for a second. He said, " His MRD was negative. It came back at zero. That's the best he could've done and he did it! I just wanted to call and tell you so you don't need to wait another day since I just got them back, he did great" After letting out a big sigh of relief, I thanked him so much for letting me know. I knew that my baby was going to accomplish what he was expected to do in the first month and with flying colors. They consider .01 to be in remission, but my baby got 0. That is amazing. The next day going to family meeting we were all relieved knowing his MRD results

Tomorrow is a BIG day for Caleb. It is Day 29 of his induction therapy. He is being sedated for a lumbar puncture (spinal tap with chemo) and a bone marrow aspiration. Next week we will find out if the treatment worked during induction and threw the Leukemia into remission so we can continue with treatment and move onto the next phase. Caleb is ready. He knows he can't eat if he wakes up for his normal 2 am snack as he has been getting lately or drink anything either from midnight on. In the AM he will put on his magic cream to numb his "buddy" (port) and we will be off to the hospital. My little boy is getting so big, so fast through all this. He is understanding more than everyone thinks he is. He listens and hears everything we say. He knows he has to be strong. He knows his blood is sick and the doctors are fixing it with the "superhero medicine". He is just so strong.... and his strength keeps me going and makes me stronger. So tonight please say a  pr

Yesterday Caleb had his first clinic appointment. We were up and out the door before the sun was even awake, as he would say. He did great at his appointment. He was scared. He woke up in the middle of the night asking me to tell the dr not to use a Bandaid. Or to touch his "buddy" (port). But after everything he did great and says no more doctors Mommy. I assured him it should be a little while again before we had to come back. After his appointment I told him soon I'd bring him to his favorite spot for mini golf. I knew I had to go at opening because it would be empty and not too hot since its pretty overcast. So today at 10 am, Caleb, Aunt Jac and I headed to Jungle Golf. He got 5 holes in one! Loved seeing a smile on his face after each one. "Caleb's Mama"

Easter afternoon Dr. Sutphin came to speak with us. He gave us the news that we would be able to go home. All of us are very happy that Caleb and I are able to get back home finally. We basically lived in the hospital for nearly a month. We were released back in March  - for less than 48 hrs before being admitted again for his complications. It feels so good to be home. Even though we got home late Sunday afternoon - Easter just wasn't Easter this year for us or any of our family. Timothy and I had take out and Caleb rested on the couch and went to bed pretty early. I was exhausted. Putting your feet up and home and laying on your own couch is something I always took for granted. That night I cherished each moment I was able to curl up on my quite uncomfortable couch. Haha. Monday we had another R&R day. Every day he seems to do more. He lost a lot of weight from the pancreatitis and not being able to eat for close to ten days. So each day I try to help him gain more streng

Even though we had hoped to be home, we made the best of our Easter morning in 4017! Caleb was glad to see the Easter Bunny found his way to his room and even picked up his basket from home! They have had Easter events the past few days here at the hospital. He had an egg hunt with Shamu and met the Easter Bunny for pictures and coloring too. I havent been able to get Caleb to pose for a picture with the Bunny since he was 5 mths. He wanted one this year :) He also got to dye eggs a few days ago in the floor playroom event with other kids. He made his favorite colors and labelled them like we do at home... One for Caleb Blaise, Jersey Girl and Mommy! :) We look forward to visits from family and loved ones today. And wish each of you a very Happy Easter! Thank you for continuously thinking of us in your thoughts & prayers! We are hoping tomorrow Dr. Stephan gives us the A-OK to go home! We both can't wait! "Caleb's Mama"

Caleb's pancreatitis has improved daily since my last update. His numbers are completely back to normal and he has been weaned off the pain meds. He had swelling all over his entire body but it has all gone down or continues to go down each day. He seems like he is feeling much more comfortable than he was last week. The hardest thing has been not letting him eat anything. He hasn't eaten in eight days and last night they started him on nutrients via IV. My poor baby went days talking about the foods he wanted and would get fixated on them and keep repeating it. The oncologist on this week is great and I'm confident in what he says. He thinks he needed a few more days of rest from eating and he hasn't resumed his chemo treatment as of yet. He wants his body ready for the treatment and to handle foods once again and assure we don't run into a bigger issue from starting too soon. So this pancreatitis threw our fight off by a week or do, but I believe we will be ri