Skip to main content

Beautiful day for some fresh air!

Yesterday Caleb had his first clinic appointment. We were up and out the door before the sun was even awake, as he would say. He did great at his appointment. He was scared. He woke up in the middle of the night asking me to tell the dr not to use a Bandaid. Or to touch his "buddy" (port). But after everything he did great and says no more doctors Mommy. I assured him it should be a little while again before we had to come back.

After his appointment I told him soon I'd bring him to his favorite spot for mini golf. I knew I had to go at opening because it would be empty and not too hot since its pretty overcast. So today at 10 am, Caleb, Aunt Jac and I headed to Jungle Golf. He got 5 holes in one! Loved seeing a smile on his face after each one.

"Caleb's Mama"

Comments

Popular posts from this blog

The day our lives changed....

It was my 33 birthday... My plan was to get Caleb's cast on his leg, get some R&R, play Wii & have birthday cake. That isn't exactly how it worked out. It all started days prior when Caleb began complaining of a pain in his right wrist. Since he is a very active boy at home, in school and on the soccer field I figured it was a sprain. Plus, the way he continued to be so active and the pain was sporatic, I would give him Tylenol and tell him to rest. Finally on Saturday before his soccer game I was dressing him and he yelled as I put his shirt on. He still insisted it was ok, but to ease my mind I said we'd go to an urgent care later. He played a great game. Running around like crazy and being my little soccer star that he is. We later went to urgent care to check out his arm. After XRays they said the bone was bent and put it in a sling and to follow up with an ortho at some point this week. That didn't sit well with me.. Next stop was the Arnold Palmer ER for h

Tough Guys Don't Do Hair

Another week of treatment behind us. This week has been a rough one mentally, emotionally and physically for Caleb and I. Clinic days drain us both. They completely drain me, Lord only knows what they do to him, really. Caleb and I went into clinic at 930 yesterday and he wasn't taken for his LP until 12:10 pm. By noon, he was cranky and starving. And I didn't blame him since  he hadn't eaten or drank since 7pm the night prior. That was the longest he had to go without eating for sedation. He's been having pains in his legs and the doctor feels again it's from one of the chemos that has that effect. So I'm just treating him as needed with pain medication or morphine at home. Hoping it doesn't get as bad as it was two weeks prior. He's getting as used to it as he can not having hair. At times I think he forgets. He still has strand on top of his head, but mostly gone. It's still falling out. I remind him everyday how handsome he is and how amazing h

HAPPY 5th BIRTHDAY CALEB BLAISE!

I can specifically remember a conversation I had with my sister back in February. My sister and I have birthdays in March that fall in the same week. Each year we complain about being  another year older or closer to some milestone year. I always make fun of her because she is older and will hit those first. Anyways, I can remember a conversation this year we had about our birthdays and a comment a patient of hers said to her. My sister is an oncology nurse and works with adult cancer patients. They said that they don't dread their birthdays at all - that is yet another milestone, yet another year they are beating their disease. I agreed with her, but never did I think I'd be thinking about that in regards to my son. Caleb Blaise turns 5 years old today. My brave little boy has been through so much since his last birthday. I am thankful we found what we did, when we did. He is proving just how strong he is and how many more milestones he will accomplish. On that day he was gi