Just wanted to give everyone an update on what's been going on....
Caleb has started his consolidation phase of treatment. The first part of treatment we spent the entire day in clinic. He was there from 8am-5pm. It was a really long day, but thankfully we were able to go home after. He's been taking oral meds and swallowing them like a champ. I don't remember being 4 and wanting to or even trying to swallow a pill. Now, thankfully he swallows all of his pills like a big boy! :) He also had a spinal the following week and when accessing his port it has been getting easier. All the nurses said it would get easier and he'd get used to it - I didn't think so by the screaming he did since day one with his port - but it has. He even had NO tears when taking the needle out and getting "buddy" ready to go home.
We've had a home nurse coming over for shots of meds. Today he gets his 6th shot and he is getting used to it. He knows when Annie, our home nurse, walks in that he is getting a shot. Sadly, it's almost like routine now. As much as he says I don't want her to come, or tell her no shots - he sits down willingly on my lap and knows it has to be done. We even watched the Why, Charlie Brown, Why? movie on youtube that goes along with the book. He seems to be understanding their is a reason we need to keep going to the doctors. I even caught him last night in bed re-watching it again. As much as he can make sense of this at 4, I think he does.
As for fun, Caleb went and played at Bonanza Golf with Mommy, Aunt Jac & Cait. He had a blast as he usually does with golf. This place is a huge mountain you play on so I was nervous with him walking, but he has been doing great. He even remarked how many stairs we had to climb!!! He also got to see the new Pirates movie & had a playdate with his cousin, Avery. It's nice to get out again with him instead of being cooped up inside. I am still a nervous wreck with germs and sanitizing everything, but that will be routine for us over the next few years.He also got to Skype with his classmates from school. Even though he was super shy on the computer with them, I know he was happy to see everyone! He def misses all his friends!
Overall, he has been doing great. He still smiles everyday, which makes me happy.
Thank You for your continued support, prayers & love,
"Caleb's Mama" :)
HELP CURE CALEB
Below is song a fellow mother, with a son that has ALL posted on Facebook. Her son is in the video. All the proceeds from this song go to Help find a cure for Childhood Cancer. It's hard to grasp how many kids out there are fighting......
Caleb has started his consolidation phase of treatment. The first part of treatment we spent the entire day in clinic. He was there from 8am-5pm. It was a really long day, but thankfully we were able to go home after. He's been taking oral meds and swallowing them like a champ. I don't remember being 4 and wanting to or even trying to swallow a pill. Now, thankfully he swallows all of his pills like a big boy! :) He also had a spinal the following week and when accessing his port it has been getting easier. All the nurses said it would get easier and he'd get used to it - I didn't think so by the screaming he did since day one with his port - but it has. He even had NO tears when taking the needle out and getting "buddy" ready to go home.
We've had a home nurse coming over for shots of meds. Today he gets his 6th shot and he is getting used to it. He knows when Annie, our home nurse, walks in that he is getting a shot. Sadly, it's almost like routine now. As much as he says I don't want her to come, or tell her no shots - he sits down willingly on my lap and knows it has to be done. We even watched the Why, Charlie Brown, Why? movie on youtube that goes along with the book. He seems to be understanding their is a reason we need to keep going to the doctors. I even caught him last night in bed re-watching it again. As much as he can make sense of this at 4, I think he does.
As for fun, Caleb went and played at Bonanza Golf with Mommy, Aunt Jac & Cait. He had a blast as he usually does with golf. This place is a huge mountain you play on so I was nervous with him walking, but he has been doing great. He even remarked how many stairs we had to climb!!! He also got to see the new Pirates movie & had a playdate with his cousin, Avery. It's nice to get out again with him instead of being cooped up inside. I am still a nervous wreck with germs and sanitizing everything, but that will be routine for us over the next few years.He also got to Skype with his classmates from school. Even though he was super shy on the computer with them, I know he was happy to see everyone! He def misses all his friends!
Overall, he has been doing great. He still smiles everyday, which makes me happy.
Thank You for your continued support, prayers & love,
"Caleb's Mama" :)
HELP CURE CALEB
Below is song a fellow mother, with a son that has ALL posted on Facebook. Her son is in the video. All the proceeds from this song go to Help find a cure for Childhood Cancer. It's hard to grasp how many kids out there are fighting......
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