Thursday nights are getting to be as bad as Friday mornings. Caleb prolongs bedtime as long as he can because he knows when it's time to wake up he knows where he is going. I don't enjoy waking him up to that either. Thursday nights are also a time for me to prepare. I prepare a bag for him for the next day at clinic. This week he can eat so I have lots of goodies for him, a change of clothes, games to play and my iPad. I also prepare myself mentally what is going to go on tomorrow. I review his road map and go over the drugs he will be getting and their possible side effects.
One thing I am proud of that is since day one of diagnosis I have educated myself on his illness. I have listened as attentively as I could at every family meeting. I have researched each of the drugs, his protocol, his doctors and his hospital. I have reached out to other parents going through the same thing for support and reference. I want to do the best I personally can as a mother for my son. I want to know I am making the right decisions for my son. I want my son to have as much as a normal life as I can while he goes through treatment. I want to be there by my sons side for every treatment, procedure, poke and blood draw. I would never miss any of that.
He knows that when he wakes up from his sedation each week, Mommy is right there - holding his hand and talking to him through his procedure. I didn't sit in on his first sedation and bone marrow, but since then I have. I am glad I chose to. And the reason I do this is because............
Caleb's Battle Is My Battle.
I'm going to support him until he WINS!
We are fighters & this bond is unbreakable!
Thank You ALL for your continued love & support!
"Caleb's Mama"
You are an amazing Mom!
ReplyDelete